We Need Universal Mental Health Screening for Women Having Babies

we-need-universal-mental-health-screening I experienced both a postpartum mood disorder (postpartum psychosis) and a perinatal psychiatric issue (a manic episode which led to psychosis) very early on in my second pregnancy. I had been diagnosed with Bipolar Disorder two years before my husband and I decided to start a family, and yet I found limited support and information in my quest to have as healthy a pregnancy and postpartum experience as I could. When I think back to that time in my life, I strongly believe that if I had received better screening - particularly after my first pregnancy - much of the trauma and heartache of what I went through could have been avoided.

Before I experienced mental illness on a personal level, my ignorance of the various forms of psychiatric conditions caused me to judge people whose stories were covered in the media. I remember watching news coverage of the Andrea Yates trial thinking HOW COULD THAT HAPPEN? And then it happened to me seven years later. Thank God my outcome was drastically different.

Just this week a pregnant mother and her three children were rescued in Daytona Beach, after she drove the family minivan into the ocean. A family member had called police hours earlier to express concern over her strange behavior, including talk of demons.  On the 911 tapes, you can hear the sister request a well-being check because "she's like having psychosis or something."

This woman literally saved her sister's life, the lives of those three children and the life of her sister's unborn baby with that call for help.

They were lucky to have avoided an outcome similar to that of the Andrea Yates case. Simply because someone close to the person who was suffering took action.

Now it's our turn to take action. There is an urgent need for changes in the way we screen women during pregnancy and postpartum in order to stop incidents like these from ever occurring in the first place.

Maybe this woman's sister recognized what her family member was going through because of the increase of more open dialogue about women's mental health issues. I can feel the wave of mental health awareness gaining momentum and hope that very soon there will be less ignorance out there and more acceptance. Because together we can make a difference.

Which is why I support this important White House petition to create mandatory universal mental health screening for pregnant and postpartum women. Did you know that suicide is the leading cause of death for women during the first year after childbirth? Or that 1 in 7 women will experience a mood or anxiety disorder during pregnancy or postpartum, yet nearly 50% remain untreated?

We need change. We need to screen every mother, every time to prevent and treat perinatal mental illness.

Recovery is possible - I am a perfect example of this. But wouldn't it be incredible if in the future we could catch cases like mine before they escalate? Before they lead to suffering and even death? No woman should have to suffer in silence because she's afraid to admit what she's thinking or feeling. We need to provide her with the chance to find recovery early. We need to recognize the signs and symptoms and take action.

Please take a moment to sign the petition: Every Mother, Every Time. Creating a WhiteHouse.gov account takes only a minute and there are simple tools to share the petition on Facebook and Twitter once you have submitted your signature.

This movement will save lives. We need 100,000 signatures to get the attention of the Obama Administration. Let's come together to make our voices heard on this critically important issue.

Every Mother, Every Time.

Tweet about the petition with the hashtag #EMET:

[Tweet "Universal mental health screening 4 every pregnant & postpartum woman http://ow.ly/uho8X. #EMET"]

Thank you for helping to spread the word.

So long, self-doubt

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Why does self-doubt seem to know exactly when to punch you in the gut and knock the breath out of your chest so fiercely that you wonder if what you’re doing with your life is even making an impact?

A month ago I took the greatest risk of my life thus far by launching our Kickstarter for This Is My Brave, and it went above and beyond my wildest expectations. I thought to myself, “Yeah. $6,500 in 31 days is a lofty goal, but I’m fairly confident we’ll get there.”

The love and support that poured out from our friends and family and people who we hadn’t even met in the form of donations and words of encouragement was both overwhelming and exhilarating.

There are so many people who are just as passionate as we are about spreading messages of hope and inspiration while at the same time silencing the stigma surrounding mental illness. We raised over $10,000 for our show’s mission and I felt like we were on top of the world.

But the emotional high I was surfing on came crashing down like a monster wave when the news of the Deeds' family tragedy broke on Tuesday morning. The weight of the story was like a 50-pound brick on my heart. It was all I could think about. I wanted to scream “THIS COULD HAVE BEEN PREVENTED!” to every person I ran into in my daily comings and goings all week.

And then I met someone who understood.

Have you ever had one of those moments when you meet someone new and you can tell after talking with her for five minutes that she just "gets" you and although you were strangers six minutes earlier, it feels as if you've known her for ten years?

It happened to me on Thursday and was the highlight of my day. Once I got my baby girl down for a late nap, I immediately took pen to paper. A piece of me still wants to prove to my mom that she was wrong. That I've received nothing but overwhelmingly positive support for opening up about living with mental illness, especially from the moms at my son's preschool. The very group she thought might shun me. Back then my mom didn't realize that by keeping quiet about what I was going through she was actually adding to the stigma surrounding mental illness. We were all so new to it eight years ago. And I don't blame her for wanting to protect me. She's my mom, and moms don’t ever want anyone to hurt their babies.

We've come a long way since then and both of my parents {and my in-laws} are very supportive of the advocacy work I'm doing now.

This sweet mom whose daughter has been in my son's class all fall, yet I only met this week. She said something to me as we were chasing our toddlers out the door after dropping off our two older kids in front of their classroom. And I know will stick with me forever.

"You must feel such a sense of accomplishment and pride in what you're doing and how many people you're impacting with This Is My Brave."

And do you know what my response was? Of course I later thanked her for her kind words, but my immediate response was, "I feel like I'm not doing enough."

Part of me felt compelled to blog about the self-doubt that crept into my bones this week to remind myself that what I'm doing with This Is My Brave is pretty spectacular. Even though in the wake of the news out of Virginia this week I feel like it's only a teeny sliver of hope. A faint glimmer of the desire to improve the way society and our government deals with mental illness.

 At least it's a start.

We talked for an hour while our 3-yr-olds ran around and explored every corner of the playground. I could have talked with her for the entire rest of the afternoon. But alas, the temperature won out and after running around with no coat on, baby girl was adequately frozen and ready to call it quits. I gave my new friend a hug as we said goodbye and I'm already looking forward to our next impromptu playdate with our littles.

While driving home my thoughts drifted to how the sky looked similar to the way it did in late October of 2008 when I was released from my week-long stay in the hospital after having experienced postpartum psychosis. My heart aches for the Deeds family because they weren't able to get the medical attention and treatment that their son so desperately needed. They should have been visiting him in the psychiatric unit of the hospital today, but instead they are planning his funeral.

This isn't right.

We need the laws changed so that we can protect these individuals from themselves and others when they are so ill. And we need nets, as my friend Glennon so vividly described in this post. We need so many nets.

This Is My Brave is my effort to create a net.

And although I know that I want my next step to be petitioning our government for changes to our mental health system, my focus right now is on this show, my heartfelt contribution to changing the way people feel about mental illness.

And hopefully, in turn, it will inspire people to come together and create actions which will facilitate the change we so desperately need.

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The Stretch of This Is My Brave

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Eight years ago this Christmas my life changed forever. I didn't realize it at the time, nor did my family and friends, but it was a beginning of a new chapter. After the shock of it all, there were tears, there was the grieving of the life I left behind, and there was a whole lot of learning ahead of us.

I've always been a writer, this I knew. But never did I think that writing would be the one thing that would help me recover from a mental illness. It would be through writing that I would find my brave.

My blog began as an anonymous online place for me to write about what it was like to be a mom living with bipolar disorder. I found my voice as a mental health advocate only six months ago and I’m now in the midst of catapulting stories of inspiration and hope from people who live with mental illness into the spotlight to change society’s perception of mental illness. It’s a little project called This Is My Brave.

 

“There is no greater agony than bearing an untold story inside of you.” - Maya Angelou

 

At thirty-four, I reached a point in my life where I didn’t want to regret not sharing my story. From vivid descriptions of my periods of extreme mania to the crushing reality of not being able to get out of bed during my year-long battle with depression and anxiety when I was first diagnosed, these stories were pacing my brain as if they were caged animals, desperate to be let out. And so my blog became a place where I released those memories of my story for whoever was on the other side of the Internet to read. My hope was that they found comfort in knowing they weren’t alone.

Talking about my illness and the struggles I had to overcome to get where I am today has not only been therapeutic, it’s also shown me that people are listening. People trust me to read their stories sent through emails which describe the pain and anguish they’re going through.

Then they thank me for my honesty and my ability to speak out for them since they’re not ready or able to:

"Thank you again for your blog and being brave enough to speak up about your experiences. I don't have many opportunities to talk about it in my daily life and interactions with other people.  It's just not something that comes up in casual conversation, but it is constantly on my mind." - S.H. via email

“Thank you for all that you do to advocate for mental illness. You are truly a brave and strong role model to me, as I'm nowhere near the level of acceptance or balance that you are. Anyway, I just wanted to send you my thanks and cheer you on.” - C.K. via email

"I'm in a unique position in that we recently moved here and I haven't known my friends here that long. Given all the misunderstandings out there about bipolar disorder, it is hard to know if they will get it or be afraid. I'm sure you understand. Hopefully, gradually, I can open up in a way that will educate them and not scare them. That's the challenge, isn't it? That's why we need a movement as you say!" - L.C. via email

Becoming an advocate and starting up this show is having an impact on people. People I haven't even met yet, but hope to someday. And it's not only people who find my blog via a random Google search who write to me, it's also friends of friends who stop me during my day-to-day activities to say, "Hey, what you're doing is really cool." And it's the texts and calls from my close friends who are telling me how proud they are of me.

I can't tell you how good that all makes me feel.

But this show isn't just about my story. This theater experience will be a wake-up call to everyone out there. It's a chance for those of us who know what it feels like to live with mental illness to open up and not be ashamed.

By coming together, we build strength by our numbers. And when we find the courage to share our stories, we propel a movement forward.

It starts with one person who is brave enough to share, who inspires others to share, which in turn inspires the world to change.

This past Sunday, our Kickstarter project for This Is My Brave reached its funding goal of $6,500. Because we recognize how important this show is to so many people, we've set a stretch goal of $10,000 and we now have 8 days left to reach it. With the additional funding we'll be able to extend our reach beyond just the one show. We'll be able to take our stories of hope and inspiration further. But we can only do it with your help.

Thank you so much to our incredible backers who have pledged and shared and supported us so graciously along this journey. With a week and a day left, we're hoping to reach further with the help of those who believe in this vision.

Click HERE to view our project on Kickstarter and share the info with friends on Facebook and Twitter. Thank you so much for your support!

My {In}voluntary Commitment and Why You Should Care

3503612082_da5ca41899Photo Credit: yyellowbird via Compfight cc

Our bedroom door creaked slowly open at 6:35am this morning and my little man crawled under the covers next to me while my husband finished getting dressed for work. As I felt the chill of little toes brush my warm legs, I thought back to this same day, five years ago, when my mania had reached the breaking point.

I had begun to cross the threshold, going from highly manic to the inevitable psychosis, when my husband took matters into his own hands and called 911 for help.

What a stark comparison to today, I thought, as I reached into my sock drawer to fish out my psych ward socks. I pulled them on this morning as a way of honoring my past, while at the same time recognizing how far I’ve come and how I don’t ever want to go back.

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If your father were having a heart attack, or symptoms consistent with those of a heart attack, you would rush him to the hospital where he would receive treatment. If your child had a 104 fever and was gravely ill but refused to take any medicine, you would call your pediatrician who would tell you to rush the child to the Emergency Room where he would receive medical assistance.

But if someone you loved were experiencing a mental health crisis and needed to see a psychiatrist or be involuntarily committed to a psychiatric facility to receive treatment, you wouldn’t believe the obstacles you have to surpass in order to get them the care they need to get well.

I know, because my family and I plunged head first into these roadblocks in the U.S. mental healthcare system five years ago when I was hospitalized for postpartum psychosis after the birth of my first child in 2008. Writing about this experience was something I wanted to do in order to educate people about the policies surrounding access to mental health care in the state of Virginia. {The laws vary by state. A good resource with links to studies and comprehensive information is MentalIllnessPolicy.org.}

In researching my mental illness and the treatment I received during my hospitalization, I requested copies my medical records from the hospital. I’d like to take you back to the week of October 22nd, 2008, approximately four weeks after I had given birth to my son. Belly still swollen, breasts leaking milk, I lost touch with reality during the early hours of that cool fall morning, but remained silent about my growing sense that this would be my last day on earth.

I was terrified of being taken away from my baby even though there was a little voice in the far corner of my mind urging me to go. I just didn’t want to listen.

That morning my husband knew from my past two manic episodes that I needed to be taken to the hospital. He called his mom and sister to come over and help, as we had been through this before and he knew my erratic manic behavior would require more than one person assisting in the effort to get me ready to be transferred. His next call was to dial 911, where he explained to the dispatcher that I had a bipolar diagnosis, was off my meds because of having just had a baby, and was now rapidly deteriorating and we were in need of help to get me to the hospital. He then called my psychiatrist, leaving her a message to tell her what was going on. And lastly he called my parents in Florida to alert them as well.

I remember being on the phone with my Dad while sitting on a chair in the kitchen, talking to him on speaker phone while the two female police officers who had been dispatched to our house were standing right before me. He was pleading with me to go with them. I don’t recall much, other than being afraid. I don’t know exactly how much time passed, but eventually they were able to take me, in handcuffs, under a Temporary Detention Order (TDO), to our local hospital for an evaluation.

I was clearly manic to the point of psychotic. It was well documented in the detention order paperwork that I had reported hearing voices and seeing ghosts in the baby’s room. My husband had told the officers that I had only slept 3-4 hours a night for the four nights leading up to his call for help. His sleep estimates were correct - it had been the weekend of our son’s baptism and I was trying to prepare for out-of-town guests along with getting everything ready for the party we were hosting. On top of learning to care for our new baby and suppressing the mania that I had felt since the night he had been born, it all caught up to me.

The Temporary Detention Order allowed my husband to have me sent to the hospital for an assessment. My husband was my Petitioner - the person asking that I be involuntarily committed. We were led to an empty hospital room where I was handcuffed to the metal bars of the hospital bed. My husband stayed by my side the entire time. The nurses assessed me and it was determined that there was substantial likelihood that, as a result of my mental illness, in the near future I would suffer serious harm due to a lack of capacity to protect myself from harm. I refused all meds in the Emergency room and I met the criteria for involuntary admission to a psychiatric ward of the hospital, not to exceed a 30-day stay.

I was taken by police car, still handcuffed, to our local hospital’s geriatric psychiatric ward, the nearest facility with a bed available. By the time the bed had become available, it was late at night and I remember being terrified upon entering the facility because of the Halloween decorations festively decorating the glass doors which were pulled open for me. My throat closed and I struggled to breathe, leaning all my weight back, attempting to keep them from guiding me in. They eventually coaxed me in and a young attendant began working with me to get me through the intake process. I remember her arms, covered with tattoos. Her name was Jenny.

They tried to give me drugs to force me to sleep, but my mania was so rampant and I continued to refuse oral medication, so I was given an injection to tranquilize me and my body succumbed to the rest it so desperately needed. I woke groggy, and still very ill.

The Temporary Detention Order meant I could be held involuntarily for one to five days, until a commitment hearing could be held. I was admitted the night of October 22nd, and my commitment hearing was scheduled for 9am on the 24th.

After only thirty-six hours of psychiatric care, I was still extremely sick and my mania was apparent to everyone close to me. But the chemical imbalance that was still working itself back to balanced with the help of the meds and forced rest, wasn’t severe enough to present me as a threat to myself or others during the trial, and despite my family’s strong arguments that I was not well enough to go home and care for myself, let alone a newborn, the judge still deemed me well enough to not be held against my will.

I was free to go home. Case dismissed.

My father spoke with the judge immediately following the trial’s conclusion. He was shocked and couldn’t believe the judge was going to send me home in the condition I was in. My father then asked if they (my family) were able to convince me to stay in the hospital, voluntarily, would I be able to stay?

The judge informed him that yes, I would of course be able to stay on a voluntary basis, but on the same token, I’d be able to sign myself out at any time.

This news was plenty good enough for my family and they immediately began encouraging me to stay and rest, so that I’d be able to return to my newborn baby in a much clearer state of mind. They knew that with just a few more days of treatment and solid sleep, I’d be in a significantly better place to where I could continue to see my outside psychiatrist and work on making a full recovery.

Fortunately, I was well enough to rationalize their concern for me and that was all it took to convince me to sign myself in. I stayed for three more days. My husband and dad came to visit me every day to check on my progress. They used my somewhat still disoriented state to their advantage as they were able to remind me each day that “we all needed to be in agreement that it was the right time for me to go home,” and I was too fragile mentally to process what had happened in the hearing so I followed their lead. I had signed myself in to stay and could leave when I was ready, but I didn’t really comprehend it all at the time.

I called home daily to check on my baby and asked them to bring pictures to the hospital. He changed so much in that week that I missed. His wispy brown hair on top fell out, so he had a bald head with only hair on the sides and around to the back. I cried at a picture they brought me of him smiling on his back laying on a blue and green striped baby blanket. Desperate to get back to my son, I eagerly took my meds each day and night, and did my best to be a model patient.

I signed myself out of the hospital on the 27th, after a 5-day stay, and walked into the kitchen of my house where my mom was stirring a pot of homemade chicken noodle soup cooking on the stove. I made my son a bottle of formula and sat on the couch to learn the art of bottle feeding him after having spent a month perfecting breastfeeding. I will never forget that moment. While feeding him and gazing into his eyes I silently vowed that I would do everything in my power to stay healthy for him. I never wanted to be taken away from him again.

Some people might say that involuntary commitment laws take away a person’s constitutional right to freedom. I completely disagree.

My family sought help for me because they knew I was so severely ill. The system initially determined I was a threat to myself, but the judge at the commitment hearing determined that was no longer the case. Situations like this happen all the time due to the current state of our mental health system and unfortunately, these holes in the system are what contribute to tragedies like Virginia Tech, Sandy Hook or the Navy Yard shootings. It’s the subjective “threat to themselves or others” which is determined by someone who has never met the mentally ill person, which is what needs to change.

People who are aware of family or friends who have mental health issues (and we all know someone given the statistic of 1 in 4 Americans living with a mental illness) need to be more proactive when they sense a change in someone’s behavior. By paying attention to the fragile mental states of people within our own environments, we will be able to push for help before it’s too late. The mental health laws need to be reviewed and modified to permit family and friends to have the ability to have people in trouble involuntarily committed for longer periods of time, so they are better able to make bigger strides towards recovery during the time in which they are under the hospital's psychiatric care. Until this done, we will continue to see more tragedies.

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On this fifth anniversary of my TDO and subsequent voluntary psychiatric commitment, I’m able to smile at my son’s insistence on dressing up as a ghost for Halloween. Five years ago I was not taking my medication and therefore went through hell, reportedly saw ghosts, and thought the world was coming to an end. But today I’m cutting eye holes out of a white sheet to dress my little man up on the last day of this month. A costume which serves as a gentle reminder of my past, while allowing me to appreciate the invisible challenges which inevitably lie ahead.

#ForMiriam I Advocate: World Mental Health Day

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When I think of what happened in DC last week, I keep coming back to the same feelings of anger, frustration and sadness.

Her life shouldn’t have ended that way.

There is something called Crisis Intervention Team (CIT) Training, which is a training program developed in a number of U.S. states to help police officers react appropriately to situations involving mental illness or developmental delay. The Washington, DC chapter of the National Alliance for Mental Illness has a page on their website describing the District’s Crisis Intervention Officer Program, as having "had 5 graduated classes of officers so far, as well as new recruit trainings."

I can’t help but wonder if the officer {or officers} who pulled the trigger had gone through CIT training.

If they had, or maybe had remembered the training during the incident, maybe the outcome would have been different.

Maybe not.

The only good thing that can happen as a result of this tragedy is advocacy in Miriam’s memory.

Advocacy to prevent something like this from happening again.

We can speak out. People like myself, who have experienced the hell of an inexplicable train of discombobulated and paranoid thoughts running through our heads. The hallucinations that come and go as fast as the minutes flying by on the clock next to the bed. The feeling that we’re invincible and don’t need sleep.

I've been there and I will continue to speak out about my experience in an effort to raise awareness for the signs and symptoms of postpartum psychosis. Because if even one person is helped through my writing, than it is worth all the effort.

Just because I experienced postpartum psychosis doesn’t make me a bad mother. It doesn’t make me a monster. It is an illness and my brain was sick. The important thing is that I got well and I made it through with treatment and support. I'm now able to help others by my work as an advocate.

And Miriam should have had that same chance.

But instead her friends and family are left to mourn this beautiful person who touched their lives and left behind is a constant reminder of her legacy, her baby girl.

It is my hope that once the darkness of their grief begins to dissipate, however far in the future that may be, the family will assume the role of advocate in their dear Miriam’s honor.

History, despite its wrenching pain, cannot be unlived,but if faced with courage, need not be lived again. - Maya Angelou

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Brave Because I Want To See Society Change

I learned of yesterday’s shooting here in Washington, DC, via the news pouring into my Twitter feed about the woman who had crashed her car into the gate surrounding the White House. There was speculation that a child was in the car with her at the time. There was also speculation that she suffered from mental illness.

Then she was shot by police and died soon after. The baby, thankfully, was unharmed in the ordeal and is now in the custody of child protective services.

I am so utterly heartbroken for this woman, her child, her family and friends and our society.

This needs to stop.

But unfortunately, until our country stops blaming people with mental illness for their conditions and starts providing the mental health services they need to get well, incidents like what happened yesterday will continue to occur.

We need to come together as a society to talk openly about mental health issues. If you notice someone exhibiting the signs and symptoms of a mental illness, do what you can to help them get the treatment they need. I guarantee you they are too sick to realize they need help.

We need to stop hiding our mental illnesses, because by hiding we are adding to the stigma.

Earlier this year I made the choice to go public with the fact that I live with Type 1 Bipolar Disorder. That I’ve been hospitalized a total of four times for mania, once was postpartum psychosis after the birth of my first child in 2008. That I once was afraid and ashamed to speak openly about my illness.

Today, I am neither afraid nor ashamed of my illness. I am proud to talk openly about my experiences because my openness helps others. They've told me so.

When we come together to share our stories, we propel a movement forward. A movement to shift the way people view the mentally ill. A movement to bring desperately needed changes to the state of mental health services in our country. A movement to stop the loss of innocent lives - both the mentally ill themselves and the people they harm when they are sick.

You see, yesterday’s news could have been me. I suffer from mental illness. But unlike Miriam Carey, I received proper treatment.

And with proper diagnosis and continuous treatment, people with mental illness can lead perfectly productive lives. They can be {and ARE} valuable members of society when they have the support and services they need to get well and stay well.

I don’t like to think about what could have happened if my husband hadn’t reached out for help. But the reality is that whenever a story like this hits the news and the person involved is thought to have “a history of mental illness,” I am brought right back to the torment and the excruciating emotional pain of what we went through as a family the times I was sick.

We need to change the public's misconceptions about mental illness because when people get treatment, lives can be saved.

I recently wrote a manifesto on my experience living with bipolar disorder. It's called Find Your Brave and I hope you'll take a moment to download it here and share. It's part of my effort to encourage people to stop hiding and seek support because we're so much stronger when we come together.

Let’s come together and show the world This Is My Brave.

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